He likes to ride his scooter, wrestle his brother, build things, color, run, jump, and do all the other things boys like to do. Oh yeah, and blow things up (imaginary things, of course).
He often stops to scratch.
You see, his skin doesn’t shed the way yours does. He has Lamellar Ichthyosis, a rare genetic condition characterized by thick, dry, scaly skin.
He wears heavy non-water-soluble ointments over most of his body to prevent his skin from cracking and to protect him from infection. Medicated creams burn, but they also help remove some of the scale. He can’t sweat over large parts of his body, so overheating is a very real danger in the summer.
Like a butterfly hidden in its cocoon, Peter’s beauty is hidden by his skin. Help us to take away the stigma associated with this condition. Help us release the butterfly by learning more about the challenges Peter and other kiddos (and adults) like him face everyday.
This is Ichthyosis Awareness Week, a time when we try to help people better understand this little known and often misunderstood condition. I’ve blogged a bit about this in the past, but this year, in an effort to help join people who have normal skin with those with who have not-so-normal skin, I’ve got a couple of reviews lined up of products that can benefit you even if you don’t have trouble shedding your skin cells…and a super giveaway planned, too.
For more info about Lamellar Ichthyosis, please read some of my previous blog posts on Peter’s condition. And please visit FIRST, the Foundation for Ichthyosis and Related Skin Types website. Consider making a donation…funds go towards research for treatment of all different types of Ichthyosis. Grab my button for this week to help spread awareness (and get an extra entry in the giveaway coming up):